Restless Legs Syndrome Awareness Day
The official RLS Awareness Day is held on September 23rd to coincide with the birth date of Professor Karl-Axel Ekbom the Swedish neurologist who first described Restless Legs Syndrome in 1945. The Awareness Day has been celebrated in other countries previously, however, 2018 was the first year that this event was officially celebrated in Australia. Please join us in raising awareness of RLS, a common yet often misunderstood disorder.
"There is so little known or understood about RLS and that needs to change"
- RLS sufferer 2019.
The theme for the inaugural Australian RLS Awareness Day in 2018 was “EDUCATION”. With much consultation with members of the RLS community, it was decided that we would carry on this theme as there is still so much more to do.
This is an opportunity to raise awareness and educate the medical community and the general public of not just what RLS is but also how it affects people who suffer from it.
Share your story
To help raise awareness and educate people about RLS we would like to share stories and thoughts written by people suffering from RLS. It is really helpful to show medical professionals, researchers, and other stakeholders stories from people affected by chronic health conditions like RLS. Without real stories, they have no idea of the impact it has and the great need to do more for people with RLS.
It doesn’t have to be a whole life story. Even just a few paragraphs can be powerful. We can also help edit it for you if you don’t feel confident about writing. If you struggle to know where to start, start by telling people what a typical day is for you. Tell people what seeing a doctor is like. How hard was it to find a doctor that understands? Have you actually found a doctor that understands RLS or is your experience still a frustrating one? What does it take to get any kind of appropriate medical care? How supportive are family and friends? How does RLS affect your work, school, social life etc. What do you want people to know about RLS?
If you would like to share your words to help raise awareness please email your piece to firstname.lastname@example.org. You can remain anonymous if you wish.
How can you help raise awareness?
Write to your local media about RLS and the RLS Awareness Day. Tell them what RLS is (the RLS Factsheet is helpful for this), what it is like to live with and why raising awareness is so important. Share the media release with them. Download a copy here.
Help distribute our RLS trifold Brochure. If you would like some hard copies of our brochure to drop off at your local doctor surgeries and perhaps chemists contact us at email@example.com and lets us know how many copies you would like sent to you and what address you would like them sent to.
Write a story or share your thoughts with us. We will be sharing stories and thoughts written by people with RLS on our website and across our social media to help raise awareness. You can remain anonymous if you wish. Send your story or thoughts to firstname.lastname@example.org
Share the stories written by people with RLS (see below) to help raise awareness of how RLS affects people's lives.
Share the RLS Awareness Day information images below on social media with your RLS message.
Add the RLS Awareness Day Facebook Frame to your profile pic and encourage friends and family to show their support by doing the same.
Change your Facebook cover to our RLSAD Facebook Cover image (see below).
Stories and thoughts by people living with
Restless Legs Syndrome
Information posters to download and share
For nearly all of my life I have suffered with RLS
"...How I survived I do not know. It was so bad some nights I just cried. I suffered some major depression, anorexia, suicidal thoughts, but all the time still continued to think it was my back. Spinal blocks, xrays, Tramadol, Lyrica, nothing touched it. I have had wonderful doctors who have tried and took my complaints seriously however I was giving wrong information to them. I didn’t know how to communicate what was happening to me in a way that they would understand..."